The Orphan Drug Machine
KHN Video: Warrior Luke
Luke Whitbeck鈥檚 life was saved by a rare disease drug, but it costs $300,000 a year.
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Repeal & Replace Watch
A Guide To Budget Reconciliation: The Byzantine Rules For Disassembling The Health Law
Republicans, who don鈥檛 have the votes to repeal the ACA directly, are hoping to use this strict budget strategy that requires only a majority vote to strip the health law of provisions they oppose.
By Julie Rovner and Francis Ying -
Republicans Standing Behind Price
KHN鈥檚 Julie Rovner is interviewed on WBUR鈥檚 鈥淗ere and Now鈥 about the Senate Finance Committee鈥檚 hearing on the nomination of Rep. Tom Price to head HHS, as well as President Donald Trump鈥檚 recent executive order on the health law.
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Sleeping Like A Baby Is A $325 Million Industry
Newborn sleep is a valuable commodity.
By Jenny Gold -
The Orphan Drug Machine
KHN Video: Orphan Drugs Creating Gold Rush For Pharmaceutical Firms
The designation, which is made by the Food and Drug Administration, allows drugmakers to claim seven years of market exclusivity.
By Sarah Jane Tribble and Francis Ying -
The Orphan Drug Machine
Sky-High Prices For Orphan Drugs Slam American Families And Insurers
Orphan drugs for rare diseases have helped or saved hundreds of thousands of patients like 2-year-old Luke Whitbeck, but families and insurers are picking up the astronomical cost.
By Sarah Jane Tribble and Sydney Lupkin -
The Orphan Drug Machine
Drugmakers Manipulate Orphan Drug Rules To Create Prized Monopolies
Drugmakers have brought almost 450 orphan drugs to market and collected rich incentives but nearly a third of those products aren鈥檛 new or were repurposed multiple times, an investigation shows.
By Sarah Jane Tribble and Sydney Lupkin -
The Orphan Drug Machine
Timeline: The Orphan Drug Act
Follow the twists and turns of the orphan drug industry over the past three decades.
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The Orphan Drug Machine
Video: Former U.S. Rep. Henry Waxman Shares Deep Concerns About Orphan Drugs
The former Congressman championed the Orphan Drug Act decades ago but now he fears it鈥檚 being manipulated to make money.
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Repeal & Replace Watch
Video Highlights: Trump Vows Replacement Will Pass At Same Time As Health Repeal
President-elect Donald Trump says his administration will offer its plan to overhaul the federal health law once Rep. Tom Price is confirmed as the secretary of the Department of Health and Human Services.
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Photo Essay
A Peer Recovery Coach Walks The Frontlines Of The Opioid Epidemic
Charlie Oen was addicted to heroin as a teenager. At 25, he's now clean and a peer counselor in Lima, Ohio, where he tries to help people who started using drugs before he was born.
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Hospital Surprise: Medicare’s Observation Care
You're in a hospital and think you're admitted. Maybe not. Many Medicare beneficiaries are surprised to learn that even after spending a couple of days, they are receiving observation care, which Medicare considers an outpatient service, so the seniors' costs can be more than expected.
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Sounds Like A Good Idea? Regulating Drug Prices
Presidential candidates from both parties have proposals they say would help lower the cost of prescription drugs. But most experts say that efforts to regulate prices might not end up saving much money.
By Julie Rovner and Francis Ying -
Sounds Like A Good Idea? Selling Insurance Across State Lines
Republicans have long touted a proposal to allow insurers to sell across state lines as a way to help keep coverage costs down. But there are some significant obstacles to making such a system work, as this video points out.
By Julie Rovner and Francis Ying -
Health Care’s Hard Realities On The Reservation: A Photo Essay
For American Indians on the Cheyenne River Indian Reservation in South Dakota, getting health care can be a weeks-long proposition, and it has some moving away from their homes and families seeking better access.
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Coping with Autism and Puberty
A family struggles with what to do when an autistic adolescent becomes aggressive.聽
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Urgent Care
This model of care is one of the ways created by the Affordable Care Act to reduce health care costs while improving quality of care. You can also watch the accompanying video that explains ACOs.
By Jenny Gold -
KHN Video Analysis
Why Did The Supreme Court Uphold The Health Law鈥檚 Subsidies?
The Supreme Court Thursday upheld a key part of the 2010 health law 鈥 tax subsidies for people who buy health insurance on marketplaces run by the federal government. KHN鈥檚 Mary Agnes Carey discusses the decision with Stuart Taylor Jr., of the Brookings Institution, and KHN鈥檚 Julie Appleby.